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NEHI Research Foundation

Working to improve the diagnostic process, find treatments, and ultimately cure all forms of Children’s Interstitial Lung Disease through the support of research.

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What We Do

The NEHI Research Foundation aims to improve the lives of our patients and their families.  As a foundation, we will support scientific research aimed at improving the diagnostic process, treatments, and ultimately finding a cure. We will work to facilitate dialogue among the medical and scientific community to expedite the discovery process and improve the care of patients. We will also work diligently to raise awareness. Last, but not least, we will provide financial assistance to patients and families as needs arise.


We are dedicated to supporting the most promising and meaningful research to change the future for those living with NEHI and other forms of chILD. Click below to see currently funded research and opportunities to participate.

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Nelson Mandela

"It always seems impossible until it's done."

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Who We Are

We are the parents and friends of children living with NEHI. Over the years countless families affected by this rare disease have touched our lives and hearts. We all share one common passion and that’s the love and dedication we have for these kids. In 2018 we decided to put our passion into action and form the NEHI Research Foundation.  Our journey to conquer the unknown and give hope for better tomorrows starts now!

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