The Penn Medicine Orphan Disease Center will host the 9th Annual Million Dollar Bike Ride on Saturday, June 11, 2022. The event will be in person this year but virtual riders are invited to participate from their own communities.  We are thrilled to have team NEHI Warrior participating for the 4th year in a row! Through this amazing partnership we have been able to support over $245,000 in pilot grants for medical research focused on NEHI. We look forward to raising awareness, supporting research, and coming together as a team with NEHI families worldwide! We have answered some commonly asked questions below. For additional questions or help reach out to carly@nehiresearch.org.

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Why are we participating in the MDBR for the 4th year?

This event is one-of-a-kind and provides opportunities we otherwise would not have.  The Penn Orphan Disease Center (ODC) partners with 30+ rare disease organizations through the MDBR. We set the parameters for the NEHI grant but the ODC truly does all the work with no overhead taken out. They distribute the call for proposals worldwide, ensuring we find the absolute best applicants.  In addition to all the wonderful work they do on our behalf they also match, dollar for dollar, up to $30,000!

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Take a look at our participation in the last two Million Dollar Bike Ride Events in 2019, 2020, and 2021.

 

When and where is the event?

The MDBR is held in Philadelphia and riders commit to ride 13, 34, or 72 miles. Riders are also invited to join as a virtual rider for free and ride in their own communities. The event was held virtual last year and we had our largest team yet! The 2022 MDBR will take place on June 11th.

 

Want to participate but not a biker?

No problem! The MDBR is a chance to raise awareness for NEHI and support promising research. Last year we had teammates run, walk, bike, and even do scavenger hunts.  Joining as a virtual rider means you can participate however best fits your family.

 

How do I register for team NEHI Warrior?

You will register through the Penn Orphan Disease Center’s website.  Riders joining us in person will pay a $25 registration fee.  Virtual riders can register for free. The more registered riders we have the more awareness we raise and the better chance we have to be asked back again next year.  We have registration instructions available on our website or you can email carly@nehirearch.org for assistance.

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Should I choose fundraising or non-fundraising rider?

If you are going to join us in Philadelphia for the event then you will want to choose “fundraising rider” when given the option. This keeps your fee to just $25. Please ignore the $250 requirement, this will be covered through the foundation’s efforts and is NOT the individual rider’s responsibility.  Make sure to choose our team “NEHI Warrior.”

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If joining us from home as a virtual rider please select "virtual rider" for free registration.

 

I’m officially on team NEHI Warrior. Now what?

We want to make sure you have some awesome gear to show team unity and raise awareness for NEHI.  Set up your fundraising page on givelively.com. In person riders will receive shirts and virtual riders who raise at least $100 will be sent a shirt for themselves and up to two additional family members.

 

How do we fundraise?

Although not a requirement, we encourage all team members to participate in our fundraising efforts.  We acknowledge the difficulties many are facing and understand not everyone is able to personally contribute and that’s ok. Regardless of your situation we all have one unique and impactful tool we can use, our NEHI Warrior’s story. By creating a personal peer-to-peer page and sharing it with friends, family, and coworkers you are making more people aware and ultimately helping us get one step closer to our goal!

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